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Home-Care Analysis
We investigated home-care provided by health professionals to identify
where formal caregivers most need assistance to provide quality
health care that supports elder independence. In the investigation,
we used a combination of interviews with home-care specialists
(geriatricians, gerontologists, nurses, dementia specialists, and
pharmacy specialists) and observations of home-care visits. The
common themes are listed below:
Functional Assessment. Medical information plays a role in
tracking and treating chronic diseases, but the ability to stay at
home largely depends on the elder's functional ability -- both
mental and physical.
- Track functional status -- changes in eating, drinking, and vital
signs -- to identify potentially treatable illnesses. Typically,
the caregiver sees a decline two weeks before hospitalization
becomes necessary.
- Clinic visits are inadequate for functional assessment because they
are too brief and out of context. The caregiver doesn't see the
individual move about to assess mobility status and has little
time to carry on conversation for mental/emotional status.
- About 75% of elders maintain a structured life. An elder who has
changing or deteriorating structure will probably leave the home
soon. Sensing changes in daily routine would be an accurate
predictor of change in status.
Shared Information. Caregivers indicated that a central location
for medical and healthcare information accessible to all
parties?elder, family, medical providers?is essential. Central
records should include medical history, personal history, personal
motivators, and information about the family support system.
- Patients have multiple doctors, each of whom prescribes medications.
- It is difficult for nurses to keep track of all patient information
and to keep it accurate and up-to-date.
- Pharmacist do not know why a physician has prescribed a medication
(e.g., an anti-depressant prescribed in small dose as a sleeping
aid does not mean elder is depressed).
- Physicians need to tell elders why particular medications have been
prescribed: what the medicine does, what happens if the elder
deviates from the prescribed instructions, and what disease the
drug is intended to manage.
Coordinating Care. There is a significant disconnect between the
medical community, professional caregivers, family caregivers, and
elders.
- Time limitations in the clinic means doctors don't usually get or
keep much useful information on geriatrics -- stories, functional
status. Doctors tend to focus on medical tests, diseases, etc.
- Professional caregivers must get physician approval for any test or
treatment administered in the home, requiring access to the
physician throughout the day.
- Caregivers provide more information about elder complaints than the
elders do, but may not be present at clinic visits.
- Few doctors understand enough about dementia to properly handle
elders brought to hospitals by their caregivers for episodes of
agitation.
Education for Dementia.
- Educating caregivers and elders about elder health related issues
will lead to a better decision making and better quality of
overall care.
- Geriatricians need better training about dementia; for example, how
to recognize the effects of a hospital or clinic environment and
respond to environmental influences appropriately. Unusual
behavior outside the familiar home environment may be
dementia-related confusion rather than the result of a medical
condition.
- Professional caregivers are often the point of reference for family
caregivers to provide education about disease progression,
treatment options, future plans/decisions that will need to be
madeThese caregivers need education to provide accurate and
useful information.
- Family caregivers need training about dementia -- what to expect, how
to handle situations, where to find resources, decision making at
each stage of dementia, how to handle stress, and how to
communicate with the medical community and elders. They need to
know where to find local resources and organizations that can
provide services (banking, transport, meal, etc.) for elders,
especially when caregivers live outside their elders'
communities.
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